Today marks one week since Presley's surgery! Last night we got to give her a much needed sponge bath and dress her in her own nightgown! She was a happy camper before she went to bed!
After sleeping with her mask on last night, her left lung looked good on the x-ray this morning and is filling with air much better. So she shouldn't have to use the mask anymore, but they still want her to have extra oxygen through her nose. The morning x-ray also showed that her right lung is still containing too much fluid. So, the goal for today was to get her up and moving more to try to drain that fluid out. Our other main issue is her feeding and possible damage or inflammation of her vocal chords. The volume in her voice is coming back more and more, and it is music to our ears to hear her talk! She was able to swallow some thickened juice and chocolate milk in small doses today which tasted good to her. We are still staying away from thin liquids at this point. It may just take time, but if her swallowing doesn't improve in the next few days they may need to do a swallow study to see if anything unusual is going on.
This morning we just spent time playing in our room and waiting for her to get her neck tubes removed. She is starting to get bored, and our bag of tricks is running out! Someone from Child Life Services came by and brought a painting activity . . . fun, fun, fun!
This morning we just spent time playing in our room and waiting for her to get her neck tubes removed. She is starting to get bored, and our bag of tricks is running out! Someone from Child Life Services came by and brought a painting activity . . . fun, fun, fun!
After the neck tubes came out, our girl was so much more free! The plan was to take a walk to the promised treasure chest! We brought along a car to ride in as well. It was so good to get her up and walking and out of the room! She grinned from ear to ear and waved to everyone she met. Our little cutie pie is quite the talk of the town around here!
Presley definitely put out a ton of fluid today, so we are hoping this will show positively on her x-ray tomorrow. She moved a lot today, which is so good for her. She's pretty tired, but we are continuing to take steps in the right direction each day. The healing process is moving along, but it just takes time. Presley is staying strong and brave, and we are so proud of our girl!
